Thursday July 02, 2009 at 11:03

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Thursday July 02, 2009 at 9:36

Renee and Duke

Yesterday (Wednesday the 1st) Renee and I went to Duke Clinic in Durham to meet her new cardiologist, who specializes in her (fairly rare) disease. With her recent troubles, we have decided to be more aggressive in seeking treatment than her previous cardiologist seemed to be.

In short, we had the best experience we could have possibly had at a doctor’s office. The staff were friendly and the doctor took his time, interviewing us himself (instead of delegating it, as often happens at other doctor’s offices). He actually spent about 30 minutes with us, asking questions and answering our questions. He did not sugarcoat or coddle us, but he was polite and knowledgeable. He told us some hard things that we might have to decide down the line and he gave us some news that relieved some of our fears.

They administered two tests to Renee and we scheduled another in 10 days or so. On the 20th we are supposed to go back and he will discuss a treatment plan, based on the results of those tests.

While we really don’t “know” anything new, we feel we are in much better hands. Hell, we are just glad he brought up a treatment plan - the previous doctor seemed more interested in maintaining the status quo than in being aggressive and actually (gasp!) treating her.

As I know more, we will fill you in. Renee and I appreciate all your prayers and well wishes. We feel very blessed, knowing that whatever the future holds, we know that we will not have to face it alone.

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Wednesday June 24, 2009 at 15:22

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Wednesday June 24, 2009 at 10:07

Swamped

Just a heads up that I am swamped right now. I have so much to do, largely because of taking three days off with Renee being in the hospital, but also just my busy time of year.

Just asking for a little grace if I owe you an email or phone call.

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Monday June 22, 2009 at 14:27

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Monday June 22, 2009 at 9:04

Home Again

Sunday afternoon the doctors came by the room and told us we were free to go, so we did!

Honestly, there are still a lot of unanswered questions: Why this happens, what to do if it happens again, etc. Luckily, we have an appointment on July 1st with a specialist who only treats the particular disease Renee has.

I am still processing this weekend. It was a whirlwind, with fear, boredom, anger and despair all present at various times. One thing we never felt was alone or unloved.

Thank you all for your love and support.

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Sunday June 21, 2009 at 9:15

If You are Reading This on Facebook

If you are reading this on Facebook, I cannot log into Facebook from the hospital. It is blocked as a “dating” site. If you leave a comment or ask a question on Facebook, I will not see it until we get home - probably Monday or Tuesday. You can go to this entry’s original location on my blog and leave a comment there on the relevant post - I can log in there no problem.

I have been updating my mini-blog at Twitter fairly often - it is the best way to see what is going on right now.

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Sunday June 21, 2009 at 8:57

Day Three in the Hospital

Or day four, if you count the 30 minutes of Thursday night.

Right now (Sunday am), I don’t know much that I did not relay yesterday. The doctor did not come by, but his Physician’s Assistant did, which is worse, because he would not commit to anything without checking with the doctor.

The long and the short of it is that we have heard rumors from the staff that we may go home today, but we heard those same rumors on Friday too. Luckily there were no incidents last night and even better, we both got mostly uninterrupted sleep. I was so punchy - I had not slept a whole night’s sleep since Wednesday night.

Several friends came by and visited us yesterday, for which we are thankful. Abby lent us some movies to watch, which is awesome and will help pass the time.

Right now, we don’t know what is going to happen - the long-term treatment options for Renee are up in the air right now. We already had an appointment with a clinic in Durham that specializes in her condition scheduled for the 1st of July - now that seems all the more important.

Please keep us in your thoughts and prayers. We are very thankful for all of you.

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Saturday June 20, 2009 at 7:02

Renee in the Hospital

Not sure who knows what, but Renee is in the hospital at Wake Med with her heart again.

Thursday night at about 11, Renee’s heart went into A-Fib again, this time with a lot of pain, which has never happend before. She actually wanted to go to the hospital, which scared me, because she never wants to go to the hospital. She was very pale, very short of breath. They admitted her to Wake Med (the local hospital).

While we were in the heart center at the Emergency Room, her internal defibrillator went off, which eased the pain but it was 20 minutes before her heart resumed a normal rhythm. When her heart enters a normal rhythm, she feels fine. Often, she feels better than fine, she feels great from having the surge of oxygen again. Anyway, at 3:00am they put her in Cardiac Care (like Intensive Care, only all the patients are heart patients) for observation and at 4:00am they sent me home, as visitors cannot stay at the CCU.

At 9:00am I was back at the hospital, waiting on doctors. They changed her pacemaker settings and ordered us moved to a regular room, which was good, because that meant I could stay in the room, instead of only an hour at a time, like in CCU.They also said they were going to keep us here Friday night for observation, and we should be going home Saturday.

We spent most of Friday afternoon just sitting, somewhat bored. When her heart is in normal rhythm, she feels perfectly normal, so sitting in a bed, doing nothing is very frustrating. We both dozed a bit and some friends popped by to visit, which was great. I ate way too many calories in the cafeteria and we both read a bit, bored but happy we would be leaving tomorrow.

About 4:45am, Renee woke me up and told me she thought her heart was back in a-fib. Then the techs started showing up - they had noticed her rhythm change on the monitor. They got a rhythm modifying drug in her and her pacemaker began pacing her heart, so within 10 minutes or so she went back into a normal rhythm. Just 20 minutes after it started, everything was back to normal and the room was empty. That was about two hours ago.

So now, we wait and see. We almost certainly will NOT get to go home today (Saturday) like we had hoped due to this latest incident. They will probably want to observe her some more and possibly change her meds around. But we won’t know anything until later in the day when the doctor comes back around.

Thank you to all my friends who have been so supportive - you know who you are. Thanks also to my followers on Twitter, some of who have never met me but have been praying for us since we got here.

If you are reading this on Facebook, I cannot log into Facebook from the hospital. It is blocked as a “dating” site. If you leave a comment or ask a question on Facebook, I will not see it until we get home. You can go to this entry’s original location at hughlh.info and leave a comment there on this post - I can log in there no problem.

I have been updating my mini-blog at Twitter fairly often - it is the best way to see what is going on right now. Several folks have asked about visiting - we would love visitors. Just email me for the room #, etc. Seriously - boredom is a huge problem for us here.

Thanks again for all your love and support. I will keep you updated, and check out Twitter for the latest.

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Thursday June 18, 2009 at 21:23

A Real One

  • Her: Hugh used to be a Christian
  • Me: Used to be?
  • Her: Well, you know. A real one.
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